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Rare Disease Day at NIH 2019 : Natcher Conference Center / ORDR, NCATS &...

Title: Rare Disease Day at NIH 2019 : Natcher Conference Center / ORDR, NCATS & CC, NIH.
Conference(s): Rare Disease Day (Conference) (12th : 2019 : Bethesda, Md.), author.
Publisher: [Bethesda, Md.] : [National Institutes of Health], [2019]
Related Names: National Institutes of Health (U.S.). Office of Rare Diseases Research, sponsoring body.
National Center for Advancing Translational Sciences (U.S.), sponsoring body.
National Institutes of Health (U.S.). Clinical Center, sponsoring body.
Description: 1 online resource (1 streaming video file (5 hr., 42 min.)) : color, sound
Content Type: two-dimensional moving image
Media Type: computer
Carrier Type: online resource
Language: eng
Electronic Links: https://videocast.nih.gov/launch.asp?27346
MeSH Subjects: Rare Diseases
United States
Congress
Webcast
Summary: (CIT): Rare diseases affect an estimated 30 million people in the United States. On February 28, 2019, NIH will host an event to raise awareness about these disorders, the people they affect, and current research collaborations. Sponsored by the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center, the event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and no disease/patient left behind. New this year will be a presentation of the first ever Zebbie award for the NCATS Rare Diseases Are Not Rare! Challenge.
Notes: Closed-captioned.
NLM Unique ID: 101744874
Other ID Numbers: (DNLM)CIT:27346
(OCoLC)1103872609

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